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Klippel Feil Syndrome
Duane Syndrome
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Tuesday, June 30, 2020
Good news with a sprinkle of not so good news
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We had our follow up appointment today with the Orthopedic Surgeon about Thomas' back. The dr came in an immediately announce he had go...
Friday, June 26, 2020
The Journey has Changed
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As I mentioned in 2018, no updates on the blog is a good thing. It means we are living life without any major interruptions in Thomas'...
3 comments:
Wednesday, February 28, 2018
Rare Disease Day 2018
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Today is Rare Disease Day! We work hard to try to keep Thomas happy and healthy all year long. Pretty much we are on a set schedule to ge...
1 comment:
Thursday, December 7, 2017
Ears - The Final Appointment
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Thomas and I made this video 11 months ago. Yesterday, we went to see our ENT for is most likely our final time. Thomas' ears are s...
Wednesday, January 11, 2017
Amazing news on Thomas' ears
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Today we had our three month follow up with Thomas' ENT. I really had no expectations going into this appointment because I honestly di...
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