I seem to be getting this a lot lately and it may have more to do with the fact that I have been slack on my blog. I am so sorry for this. Raising three boys who are all in school and various activities has been keeping me extremely busy. I have been trying to find my groove and routine but keep getting thrown around a bit more than I would like to admit. In a nutshell, I think Thomas is doing good.
When Thomas was born in April of 2010, he failed every hearing tests. It was very traumatic for me to be holding my precious new baby in my arms and think that he can't hear me. I still talked to him and sang to him as I had my other babies but sometimes tears would roll down my face as I did it. I still vividly remember leaving our first follow up appointment confirming he couldn't hear and crumbling into my friend's arms in tears. Once we were able to comprehend what was going on it was pretty easy to pull myself together. We realized that hearing loss was a obstacle but something that can be overcome. There is technology and information that will still make his life wonderful!! We could do this and we would. We have been through two surgeries and speech therapy and now you can't tell my baby ever had hearing loss. In fact, at our last ENT appointment we were able to test and find out that for the first time ever his left eardrum is working on its own!!! Praise God!! Hopefully this means no more surgeries on his ears and we will continue to pray for healing on his right ear and no ear infections that may slow down our progress. It was such a huge relief to me that his ears may give him less problems than originally thought. In light of all the other issues that have been discovered with out little man, I didn't really want his ears to be one of them.
We have also seen the Neurosurgeon last month. We did more flexion x-rays on his neck where he has Klippel Feil Syndrome that explains his fusion of all seven cervical vertebrae except between c3 and c4. We have these to make sure the space between these vertebrae are moving as they should and not sliding. If they begin to slide it will put his spinal cord in danger. Luckily, both sets of x-rays show that we are still stable at this time. We are very thankful for these results!!
Next up this month, is the orthopedic surgeon. Both the Neurosurgeon and the Orthopedic Surgeon are concerned with his bone structure and his level of pain. They both believe that he was born with a certain level of pain and we are trying to monitor if his pain level increases. However, I am beginning to think he doesn't understand the feeling of being fatigue or discomfort. Its one thing to feel a sharp pain like stepping on a rock verses the feeling of your back hurting from sitting too long. We have learned that he cannot sit for long in traditional circle time and the teacher has made some adjustments that have made a great difference. I am so happy for them both!! We still have issues at the dinner table, etc and I am going to bring this up at our next appointment. I know they will do x-rays and we will see if his back has moved any over the last six months and go from there. My prayer is that is hasn't. I like stable.
Anything else you want to know, just ask!
Thank you so much for reading, praying and supporting Thomas and our family. It really is beyond my scope of comprehension and you are loved so much for all that you do for us.
"'If you can'?" said Jesus. "Everything is possible for one who believes."
Mark 9:23
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