Today was our check up with Thomas' Neurosurgeon. I would say overall it was a normal, great check up. I do enjoy going to that office they are efficient with your time but so friendly and helpful. It is just the right combination. The neurosurgeon is only concerned with Thomas' neck and the Klippel Feil. We have done x-rays for the last four years keeping and eye on it all. Today was no different. Thomas had his flexion x-rays done of his neck and she allowed him to stand and do it which make him a very happy camper. He prefers to stand than to lay down on that hard table in awkward positions and I don't blame him. I am so proud that he is old enough to communicate such things and share with the people we work with.
The only thing we discussed was Thomas has had a couple of episodes of pain that spread across the top of his shoulders in his back and down his spine. The neurosurgeon said that could easily be explained as a muscle spasms and that while unpleasant they are normal for someone with Klippel Feil Syndrome. He shared some tips and ideas with me on working Thomas' neck muscles to help massage them, etc. to prevent the spasms. Of course, Tylenol or Motrin can always be administered as well. If they become more frequent, I should keep a log and can reach them anytime. If they continue to worsen we can go back to PT to specifically work on neck muscles. He said Klippel Feil patients naturally have tight muscles, but Thomas' are not as bad as they could be.
My sweet boy did a great job and I was very proud of him. Glad to have another appointment done and moving on to enjoy what little bit is left of our summer. In the midst of all that could be wrong, everything is Good!
Phil 4:4 Rejoice in the Lord always!! Again, I say Rejoice!!
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