So, first off, you know the appointment wasn't typical if it warrants it's own blog. Needless to say, Thomas has been experiencing pain in his right ear for the last couple of months. We saw the ENT in February and they noticed some granulated tissue growing around the tube in the ear. The doctor who saw him just gave us a prescription of more drops to tolerate it. The tube was still working and hearing was still acceptable.
Today, we went as a follow up on this issue as Thomas has still been experiencing pain. He is a tough cookie for the most part, but this was quite painful. They examined his ear and stated the granulated tissue was still there and probably the source of his discomforted. We didn't test hearing but did do the tympanogram to make sure the tubes were open and working. They passed. However, upon returning to the office our ENT came in to take a look and decided we should move to the microscope room. (Where nothing good happens) The ENT examined his ear put some lidocaine in his ear and we waited. At this point, I thought he was going to clean it.
BUT, he instead decided to remove the tube in office. Thomas has had this procedure in office before and it was extremely traumatic and painful, although last time he wasn't numbed first. There was also a lot of additional tissue connected to the back side of that smaller tube. This tube is rather large and luckily didn't have as much on the backside. Five sets of tubes and this is the first time we have been given one to take home and share. I think it's rather gross, but Thomas' thinks it is cool.
At this point, he has a hole left in his ear drum and we will have to wait on it to heal. Once it has healed then we will begin checking his hearing levels to determine if we need to replace with another tube.
Thomas is doing fine now, but it was very painful and traumatic for him. He had a rough morning afterwards and we worked hard on distracting him. A little treat didn't hurt either.
We will pray for healing at this point and no more pain and discomfort. It would be wonderful if this was the actual end to our journey with tubes, but I have a feeling this is temporary at this point.
Thank you for everyone who always prays and supports us.
Hebrews 10:23 "Let us hold fast the confession of our hope without wavering, for he who promised is faithful"
You have a beautiful son! I, too, have KFS and live in the Atlanta, GA area. I'm 53 and was diagnosed at age 43. I wish you all the best.
ReplyDeleteRhonda