Follow up with Duane Syndrome

Good Afternoon All,

I apologize in advance for being a bit slack on updating the blog, but no updates means nothing to worry about.  We had our annual eye appointment with his eye specialists.  Luckily, once again his vision is developing normally and doesn't need any correction at this time.  As for his actual eye movement and placement, they are each complex in their own way.  That was the doctor's words to describe them.  However, if he turns his head to the right five degrees he can straighten both eyes to focus forward.  As long as his eyes continue to compensate in this manner and we don't see any changes we are good to go.  I am so thankful that his eye muscles are strong and working and his brain is smart enough to make them work.  Duane Syndrome is extremely difficult to work with since the nervous system for his eyes developed differently than normal and it would be impossible to determine which nerve operates which function of the eye.  Anything that we would try to do to improve his eye could traumatically ruin any functionality that he has now.  We are also blessed because this syndrome does not seem to affect or bother Thomas at this time.  He uses it to entertain his brothers by making his eye roll around separately than the other. 

Here is the picture I took from our visit.  He is intently watching "101 Dalmatians" while waiting for the doctor.  This is also a picture of the monkey that he is able to use his monkey magic on while at the office.

On a side note, we are headed back to the ENT on Monday.  Thomas has had some issues with his right ear, non tube ear.  Apparently there is a build up of fluid and/or pressure which resulted in a severe ear infection.  We were able to treat with antibiotics from the pediatrician but the ENT called and wants to see the ear for himself.  I will keep you posted on his findings.  We are trying to elongate the time between surgeries for Thomas in his ears as long as we could keep his hearing stable and infections away.  So, prayers for this sweet boys ears are always greatly appreciated.

Jeremiah 29:11 

¹¹ For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.