Wednesday, February 28, 2018

Rare Disease Day 2018

Today is Rare Disease Day!

We work hard to try to keep Thomas happy and healthy all year long.  Pretty much we are on a set schedule to get checked by all of his specialists on a rotating basis.  There hasn't been much changed which we are extremely thankful for.  We just work on keeping him strong and comfortable.

I apologize if you are coming to my blog often to look for additional information.  The good news is there is nothing really to report.  We see his doctors and we make the best possible decisions for him.


Thomas is now 7 years old and in the 2nd grade! He is doing well for the most part and we are so grateful that God is holding him closely to him all of his days.